Will this study cure deafness? No, this study is not intended to cure deafness and it will not affect your hearing.
I already know I am deaf, how will I benefit from participating in this study? Some people are interested to know why they became deaf or hard-of-hearing. One benefit from this study is that you may find out the reason that you are deaf or hard-of-hearing. Your participation may also benefit society by helping us understand how different people feel about genetic testing for deafness/hard-of-hearing. This may help improve genetic counseling for deafness.
How many people have had this genetic test? This is the most common genetic test for deaf and hard-of-hearing people. Hundreds of people from all over the world have had this genetic test since it became available in the late 1990s.
Will it hurt to have the genetic test? No, because the brush we use is soft and we gently rub the inside of your cheek for some cells for the genetic test.
Will the overall findings of the study be shared with the deaf, hard of hearing, and hearing communities? Yes, we will share the findings of this project with the deaf/hard-of-hearing and hearing communities through newsletters, presentations, and scientific publications. More important, your name will remain confidential.
Who will have access to my genetic and audiology test results if I participate? Only you and our research team will know your genetic and audiology test results. No one else will have access to your results without your permission.
What will happen to my genetic sample? Your genetic sample will be analyzed in a UCLA laboratory and then will be destroyed at the end of the study. Your sample will not be shared with anyone else.